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Meet Addie, a real-life superhero

Adeline (Addie for short), almost 3 years old, is a Brain Cancer Survivor.

We’ve been privileged to have photographed her twice already! The first time she was at the studio was in June of 2017, when she was eleven months old. Vanessa, Addie’s mom, dressed her up in an adorable Wonder Woman costume. And, Addie wore it happily and proudly. Through her giggles, we could see Addie’s courage, strength, and resilience. And we were profoundly moved by the positivity her parents displayed.

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Two years later, in honor of Brain Cancer Awareness month, Addie joined us for another photo session. She had finished her treatment and was in a great place. You’d never know that this little girl had undergone intensive treatment and struggle; she was smiley, outgoing, and filled with a vibrant personality.

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HER INSPIRING STORY

At five months old Addie was diagnosed with Embryonal Tumor with Multilayered Rosettes (ETMR), a serious brain tumor primarily affecting children under four years old. ETMR has a less than a 10% survival rate.

Derek Hanson, M.D., section chief of pediatric neuro-oncology at Joseph M. Sanzari Children’s Hospital at Hackensack University Medical Center, created a new treatment protocol for Addie, which proved to be successful. After undergoing four rounds of chemotherapy and a stem cell transplant, and being placed on a new clinical trial to prevent relapse, Addie received her first clean scan in September 2017. To date, her scans remain cancer free.

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Dr. Hanson

Derek Hanson, M.D., section chief of pediatric neuro-oncology at Joseph M. Sanzari Children’s Hospital at Hackensack University Medical Center, created a new treatment protocol for Addie, which proved to be successful. After undergoing four rounds of chemotherapy and a stem cell transplant, and being placed on a new clinical trial to prevent relapse, Addie received her first clean scan in September 2017. To date, her scans remain cancer free.

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Thoughts from Addie’s mom, Vanessa

“After being given the news that your child is most likely going to die, every single day and every single milestone is that much more important and special. We can’t take anything for granted. It taught us to be happy with the small things and value family and friendships.”

“When we received the prognosis, there was no treatment protocol for ETMR. There are so many rare tumors that need more research. It is not acceptable in this day-and-age that a child is given a less than 10% chance because there is not enough research. Cancer is not as rare as we all like to think it is. It is so important because these kids deserve a chance. Our kids deserve better than that.”

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Tackle Kids Cancer

Tackle Kids Cancer is funding efforts to provide this ETMR treatment protocol to patients around the globe.

Dr. Hanson explains, “Through our Tackle Kids Cancer funding we will be launching an international registry and research platform for children with ETMR. The registry will collect clinical information from ETMR patients from across the globe and available tumor specimens. This information will serve as a resource for physicians and researchers to improve our understanding of ETMR and develop better approaches to treatment and overall care of children with ETMR.”

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See ya soon, Addie!

It's been a pleasure getting to know Addie and her family. Providing them with lasting photos and documenting their special journey is one tiny thing we can do for them.

Good luck in preschool, Addie! We can’t wait to see you again at the studio soon!

For more info or to donate, please visit http://www.tacklekidscancer.org/

54 South Park Street
Montclair, NJ 07042